Captain's Blog

[substitute]

We're entering the Kreplach Nebula!

I am now down 10 lbs of the 50 I need to lose. This pleases me.

On the minus side, my reading in science! shows that it's very likely that I'm actually diabetic and not "insulin resistance syndrome". The chance that I have a reversible syndrome appears low. Assuming that I really have Type 2 diabetes mellitus, it's likely to get worse throughout my life, and eventually kill me. I can't say this is good news in any way. It's just bad news. Barring a miracle, things are probably going to get more difficult over the years and not less.

However that is in general the Human Condition. I just know one of the things that's going to kill me now.

Had good conversations at D's today, first with "D.Z." who is one of the guys who rebuilds classic cars, and then with Nick. Nick claims that Zardoz is actually a good movie, but I suspect a crush on Charlotte Rampling is the source of this idea.

Tomorrow I mostly have a day off, including a haircut and my second course on how to be sick.

Comments

[tuliphead.livejournal.com]

i live with a fairly severe bone disease, called Osteogenesis Imperfecta. if you ever saw the movie Unbreakable, you've probably heard of it.

i'm actually fairly lucky in that i have a pretty mild form of this disease. i've broken relatively few bones in comparison to other OI patients. i'm tall and fairly strong and get around well. on the other hand, i've had a few severe, debilitating breaks. i have reconstructed joints and break-related aches and arthritis that will only get worse with time. there are lots of things i can't do.

when i was young, and before a lot was known about OI, i was told i could expect a fairly young death due to it. or perhaps a childbed death. i've outlived the expectancy i was given a long time ago, but these days, that's not surprising. OI could be the death of me any day of the week, but i could also live a full life and see the kind of lifespan most people in my family have - late 80s to 90s.

i guess what i'm trying to say is that so much of how your health conditions affect you is how you LET them affect you. it sounds like you're well on your way to managing your health and your condition in a smart and healthy way, and that's great. if you can, though, try not to think of it as the thing that is going to kill you, or make your life less full, or make you live life like a sick person. you have a manageable condition that is part of your everyday life now. some aspects of it are out of your control. it may or may not get worse - you may not have any control over that, and that right there is enough to get anyone down. but how you live your life, outside of managing this condition, is still up to you. how you approach living with this condition is up to you.

you probably didn't want a pep talk here, but, as someone with a lifelong health condition who used to only be able to look at the grim side of it, i couldn't resist adding in my $.02. anyway, i'm sending positive thoughts your way..